Please help us plan for next year by filling out this quick 2 minute survey. Your feedback is extremely valuable, especially as we plan for an in-person event for 2022 to celebrate the 10th Annual Happy Heart Week. Thank you! Click here.
"The cruelest irony about Barth Syndrome is how deceptively healthy those who have it may appear. A casual observer would never appreciate them to have such a devastating illness." ~Peter Barth, MD, PhD