13th ANNIVERSARY HAPPY HEART PARTY ~ Sept. 27th, 2025
The Happy Heart Party 2025 was truly a night to remember! What an unforgettable evening it was—celebrating with old and new friends, surrounded by laughter, love, and hope. The awareness shared and the funds raised that night mean the world to our family and to the entire Barth syndrome community. Thanks to the incredible generosity of the Happy Heart community, collectively we raised an astounding $320,000 in 2025 for the Barth Syndrome Foundation. These gifts fuel research, connect families, and help move us closer to real, accessible treatments for kids like Henry. THANK YOU to all that helped make this party a beautiful success!
And, we were able to celebrate the approval of the first treatment for Barth syndrome! Elamipretide was approved under accelerated approval by the FDA on September 19th, 2025. This is a monumental milestone, and we are incredibly relieved. However, much work is still to be done on the required post-approval trial and on making sure all have access to this life-giving and life-saving medication. We wouldn't be here today without the years of support from the Happy Heart community ~ THANK YOU!
And, we were able to celebrate the approval of the first treatment for Barth syndrome! Elamipretide was approved under accelerated approval by the FDA on September 19th, 2025. This is a monumental milestone, and we are incredibly relieved. However, much work is still to be done on the required post-approval trial and on making sure all have access to this life-giving and life-saving medication. We wouldn't be here today without the years of support from the Happy Heart community ~ THANK YOU!
Many of you have supported us for years, and we are beyond grateful. Thank you for your loyalty and compassion on this cause.
PRESENTING Sponsor: Branagh Construction
HAPPY Sponsors: Basco Drywall & Painting, Branagh Development, JBL Home Ranch
HOPE Sponsors: Bay City Mechanical, Diablo Valley Cabinetry, Legacy Risk & Insurance, Pacific Galvanizing, Nick Tarrab & UBS
FACT and COMMUNITY Sponsors: Diablo Valley Cabinetry, Julie Fiske Realty; The Bauer Family, Canyon Club, The Hideout Kitchen, Porsche Walnut Creek, Rudney Associates, Stanford Children’s Health
PRESENTING Sponsor: Branagh Construction
HAPPY Sponsors: Basco Drywall & Painting, Branagh Development, JBL Home Ranch
HOPE Sponsors: Bay City Mechanical, Diablo Valley Cabinetry, Legacy Risk & Insurance, Pacific Galvanizing, Nick Tarrab & UBS
FACT and COMMUNITY Sponsors: Diablo Valley Cabinetry, Julie Fiske Realty; The Bauer Family, Canyon Club, The Hideout Kitchen, Porsche Walnut Creek, Rudney Associates, Stanford Children’s Health