Sponsor Happy Heart Week 2026
This May, we will celebrate Henry’s 14th birthday with our annual virtual campaign—bringing together a community committed to driving progress forward.
We are seeking a small group of sponsors whose early support helps lay the foundation for the entire week—amplifying awareness, inspiring giving, and accelerating the work of the Barth Syndrome Foundation.
Make a meaningful impact by fueling this special week
Why Your Support Matters
As a sponsor, your support directly advances critical initiatives, including:
With only about 300 individuals worldwide living with Barth syndrome, every effort matters.
Every partnership has the power to create real, lasting impact—not only for those living with Barth syndrome, but for the broader rare disease community as well.
- Ongoing clinical trials and the path toward full treatment access
- New and innovative research
- Family services and support
- Global collaboration within the Barth syndrome community
With only about 300 individuals worldwide living with Barth syndrome, every effort matters.
Every partnership has the power to create real, lasting impact—not only for those living with Barth syndrome, but for the broader rare disease community as well.
A Community Driving Real Progress
In 2025, this community achieved something extraordinary.
After years of advocacy and research, the first-ever treatment for Barth syndrome received FDA accelerated approval—the first approved therapy for any mitochondrial disease.
That progress is only possible because of supporters like you.
And while this milestone gives us hope, it is not the finish line. More work remains to ensure access, advance research, and continue building a future where individuals with Barth syndrome can truly thrive.
After years of advocacy and research, the first-ever treatment for Barth syndrome received FDA accelerated approval—the first approved therapy for any mitochondrial disease.
That progress is only possible because of supporters like you.
And while this milestone gives us hope, it is not the finish line. More work remains to ensure access, advance research, and continue building a future where individuals with Barth syndrome can truly thrive.
Why Sponsor Happy Heart Week
Happy Heart Week is more than a fundraiser—it’s a powerful, story-driven campaign that:
- Reaches a highly engaged and growing audience (emails sent to over 700 unique household)
- Connects supporters across the country and around the world
- Inspires meaningful giving and awareness
- Centers around a deeply personal and authentic story
Sponsorship Opportunities
We offer a range of sponsorship levels for individuals, families, and businesses who want to be part of this impact.
Sponsorship opportunities are available at varying levels, each offering visibility and engagement throughout the campaign.
Sponsorship opportunities are available at varying levels, each offering visibility and engagement throughout the campaign.
Explore options and choose what feels right for you.
Join Us
When you are part of a community this small, every voice matters. Every partnership matters.
We would be honored to have you join us as a sponsor of Happy Heart Week 2026.
If you have any questions or would like to connect directly, we would love to hear from you.
Join us in building what comes next.
We would be honored to have you join us as a sponsor of Happy Heart Week 2026.
If you have any questions or would like to connect directly, we would love to hear from you.
Join us in building what comes next.
With gratitude from our family—and the entire Barth syndrome community.
Heart Sponsors: Basco Drywall and Painting • Branagh Construction • Branagh Development
Hope Sponsors: Nick Tarrab & UBS • Pacific Galvanizing
Impact Day Sponsors: Diablo Valley Cabinetry • Julie Fiske Real Estate • The Kintzer Family
Community Sponsor: Rudney Associates
Hope Sponsors: Nick Tarrab & UBS • Pacific Galvanizing
Impact Day Sponsors: Diablo Valley Cabinetry • Julie Fiske Real Estate • The Kintzer Family
Community Sponsor: Rudney Associates