2025 Happy Heart Week ~ Monday May 12th - Sunday May 18th
2025 Happy Heart Party ~ Saturday, September 27th
Henry’s birthday is May 2nd. He will be 13! Birthdays are always such a sweet celebration. But even more to us now, birthdays remind us in a very literal way of our gratefulness for each breath everyday and our time together here on earth. For Henry’s 13th birthday, we are going to celebrate his beautiful life, his challenges with Barth syndrome, the other boys and men suffering from this disease and their families, and the great work the Barth Syndrome Foundation is currently doing, just like we have done for so many years now. The virtual celebration will happen Monday May 12th through Sunday May 18th. Through an email and social media campaign, we are hoping to raise awareness around this disease and raise important funds for the Barth Syndrome Foundation so that they can keep working towards a treatment or cure, of which there is currently NONE.
And then we are going to PARTY!
And then we are going to PARTY!
SAVE THE DATE!
Saturday, September 27th
Happy Heart Party at the JBL Ranch, Briones, CA
That's right, there's going to be a party! Tickets will go live during Happy Heart Week, so stay tuned. If you are interested in helping plan in any way, please reach out! We'd love your help. Interested in sponsoring the event? Check back here soon for sponsorship opportunities.
While tremendous strides have been made, we are not there yet. Your support and donations are critical in helping us get to the finish line! Thank you for coming alongside us on this journey, cheering Henry on as he thrives and struggles, and making a difference in our lives and the lives of others affected by this difficult disease.
We will be sharing more info on everything during HHW2025. The research necessary for clinical trials and treatments to come to fruition and for all of the other important work BSF is doing, is helped funded with the money we (as in HHW) raise. Over the past 12 years, Happy Heart Week has sent over $1 MILLION to BSF. THANK YOU! We are so grateful for your generosity over the years.
All donations can be made directly to the Barth Syndrome Foundation and will be tax deductible. We can assure you, the money will be extremely well used and is so, so greatly appreciated.
Please let us know if you have any questions! And we would appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing. And all donors will receive the 2025 Henry Card. That alone is a reason to donate :)
2025 HAPPY shirts will go live during Happy Heart Week. Be sure to check out the new styles and colors.
We will be sharing more info on everything during HHW2025. The research necessary for clinical trials and treatments to come to fruition and for all of the other important work BSF is doing, is helped funded with the money we (as in HHW) raise. Over the past 12 years, Happy Heart Week has sent over $1 MILLION to BSF. THANK YOU! We are so grateful for your generosity over the years.
All donations can be made directly to the Barth Syndrome Foundation and will be tax deductible. We can assure you, the money will be extremely well used and is so, so greatly appreciated.
Please let us know if you have any questions! And we would appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing. And all donors will receive the 2025 Henry Card. That alone is a reason to donate :)
2025 HAPPY shirts will go live during Happy Heart Week. Be sure to check out the new styles and colors.
As always, thank you for your prayers, care, concern, and continued support. We are forever indebted and grateful!
With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh
With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh
