PLEASE JOIN US!

That's right, there's going to be a party! Mark you calendars now! You won't want to miss it. As an ultra-rare indication, support in all ways from those indirectly affected is crucial. We so value your support!
If you are interested in helping plan in any way, please reach out! We'd love your help.  
Have something to donate for the auction? Please let us know! 
Purchase tickets here.

SPONSOR THE HAPPY HEART PARTY 2025!

Interested in sponsoring this special event?  Join our growing Sponsors list now. Check here for sponsorship opportunities. Options at many levels for both businesses and families alike. We could not do this without the support of these generous sponsors!
​

DONATE SOMETHING FOR THE AUCTION!

We’re curating an exciting mix of items and experiences for this year’s auction and we’d love your help.  Please let us know if you have something to contribute!

2025 Happy Heart Week ~ Monday May 12th - Monday May 19th

Henry turned 13 on May 2nd, and as always, his birthday was a meaningful celebration of life, love, and gratitude especially in light of his journey with Barth syndrome. For the 13th year in a row, we honored his life and the lives of others affected by this rare disease through Happy Heart Week, held virtually from May 12–19. Thanks to your incredible generosity, HHW 2025 raised $88,000 for the Barth Syndrome Foundation, bringing our total impact to over $1.1 million. These funds directly support BSF’s ongoing research, advocacy, and progress toward a treatment or cure—because right now, there is still none. We are so grateful for your continued support, for walking this journey with us, and for cheering Henry on through every triumph and challenge. Donations can be made directly to the Barth Syndrome Foundation and are tax deductible—every dollar is deeply appreciated and put to meaningful use.
While tremendous strides have been made, we are not there yet. Your support and donations are critical in helping us get to the finish line! Thank you for coming alongside us on this journey, cheering Henry on as he thrives and struggles, and making a difference in our lives and the lives of others affected by this difficult disease.

Please let us know if you have any questions! And we would appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing during Happy Heart Week and throughout the year. 
As always, thank you for your prayers, care, concern, and continued support. We are forever indebted and grateful!

With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh