2023 Happy Heart Week ~ Monday May 15th - Monday May 22nd

While you will have to wait until next year for another epic Happy Heart Party, this year will be sweet and special just like in years past. In addition to our traditional week-long virtual fundraising and awareness campaign, we will have a couple of fun local SF Bay Area events to attend...more info coming soon.

Consider Sponsoring Happy Heart Week 2023! Several different sponsorship opportunities are available at many levels! Would love for your company's or family's support in this way. 
Henry’s birthday is May 2nd. He is turning ELEVEN! Birthdays are always such a sweet celebration. But even more to us now, birthdays remind us in a very literal way of our gratefulness for each breath everyday and our time together here on earth. For Henry’s 11th birthday, we are going to celebrate his beautiful life, his challenges with Barth syndrome, the other boys and men suffering from this disease and their families, and the great work the Barth Syndrome Foundation is currently doing, just like we have done for so many years now. The virtual celebration will happen Monday May 8th through Monday May 16th. Through an email and social media campaign, we are hoping to raise awareness around this disease and raise important funds for the Barth Syndrome Foundation so that they can keep working towards a treatment or cure, of which there is currently NONE.

While tremendous strides have been made, we are not there yet. Your support and donations are critical in helping us get to the finish line! Thank you for coming alongside us on this journey, cheering Henry on as he thrives and struggles, and making a difference in our lives and the lives of others affected by this difficult disease.

We will be sharing more info on everything during HHW2023. The research necessary for clinical trials and treatments to come to fruition and for all of the other important work BSF is doing, is helped funded with the money we (as in HHW) raise. Thank you!

All donations can be made directly to the Barth Syndrome Foundation and will be tax deductible. We can assure you, the money will be extremely well used and is so, so greatly appreciated.

Please let us know if you have any questions! And we would so appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing. And all donors will receive the 2023 Henry Card. That alone is a reason to donate :)
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As always, thank you for your prayers, care, concern, and continued support. We are forever indebted and grateful!

With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh
Disneyland 2018