SAVE THE DATE! 
Saturday, September 27th
Happy Heart Party at the JBL Ranch, Briones, CA

That's right, there's going to be a party! Mark you calendars now! You won't want to miss it. 
If you are interested in helping plan in any way, please reach out! We'd love your help.  
Have something to donate for the auction? Please let us know! 
Tickets will go on sale end of July.
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SPONSOR THE HAPPY HEART PARTY 2025!

Interested in sponsoring this special event?  Join our growing Sponsors list now. Check here for sponsorship opportunities. Options at many levels for both businesses and families alike. We could not do this without the support of these generous sponsors!
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2025 Happy Heart Week ~ Monday May 12th - Monday May 19th

Henry’s birthday is May 2nd. He turned 13! Birthdays are always such a sweet celebration. But even more to us now, birthdays remind us in a very literal way of our gratefulness for each breath everyday and our time together here on earth. For Henry’s 13th birthday, we celebrated his beautiful life, his challenges with Barth syndrome, the other boys and men suffering from this disease and their families, and the great work the Barth Syndrome Foundation is currently doing, just like we have done for so many years now. The virtual celebration was Monday May 12th through Monday May 19th. Through an email and social media campaign, we raised awareness around this disease and raised important funds for the Barth Syndrome Foundation so that they can keep working towards a treatment or cure, of which there is currently NONE. 

HHW2025 was a SUCCESS! $88,000 was sent to the Barth Syndrome Foundation. THANK YOU to all that participated! 
While tremendous strides have been made, we are not there yet. Your support and donations are critical in helping us get to the finish line! Thank you for coming alongside us on this journey, cheering Henry on as he thrives and struggles, and making a difference in our lives and the lives of others affected by this difficult disease.

The research necessary for clinical trials and treatments to come to fruition and for all of the other important work BSF is doing, is helped funded with the money we (as in HHW) raise. Over the past 13 years, Happy Heart Week has sent over $1.1 MILLION to BSF. THANK YOU! We are so grateful for your generosity over the years. 

All donations can be made directly to the Barth Syndrome Foundation and will be tax deductible. We can assure you, the money will be extremely well used and is so, so greatly appreciated.

Please let us know if you have any questions! And we would appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing during Happy Heart Week and throughout the year. 
As always, thank you for your prayers, care, concern, and continued support. We are forever indebted and grateful!

With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh