2022 Happy Heart Week ~ Monday May 9th - Monday May 16th
Happy Heart Friends and Family! The 10th Annual Happy Heart Week 2022 is just around the corner! This special week will look a lot like the last few years, a virtual fund and awareness raising campaign for Barth syndrome, centered around Henry's birthday. PLUS, A BIG HAPPY HEART 10th ANNIVERSARY PARTY is happening Friday evening, May 13th, and you are invited! Mark your calendars, book a sitter, grab your dancing boots, and get ready to celebrate! Party is in person (outdoors) at the JBL Ranch in Briones, CA, just down the road from our house. A few tickets are still available, please reach out if you are wanting to come!
artwork by KellyKay.com
Henry’s birthday is May 2nd. He is turning TEN! Birthdays are always such a sweet celebration. But even more to us now, birthdays remind us in a very literal way of our gratefulness for each breath everyday and our time together here on earth. For Henry’s 10th birthday, we are going to celebrate his beautiful life, his challenges with Barth syndrome, the other boys and men suffering from this disease and their families, and the great work the Barth Syndrome Foundation is currently doing. The virtual celebration will happen Monday May 9th through Sunday May 15th, with a big party right in the middle of the week. Through an email and social media campaign and the party, we are hoping to raise awareness around this disease and raise important funds for the Barth Syndrome Foundation so that they can keep working towards a treatment or cure, of which there is currently none.
While tremendous strides have been made, we are not there yet. Your support and donations are critical in helping us get to the finish line! Thank you for coming alongside us on this journey, cheering Henry on as he thrives and struggles, and making a difference in our lives and the lives of others affected by this difficult disease.
We will be sharing more info on everything during HHW2022. The research necessary for clinical trials and treatments to come to fruition and for all of the other important work BSF is doing, is helped funded with the money we (as in HHW) raise. Thank you!
All donations can be made directly to the Barth Syndrome Foundation and will be tax deductible. We can assure you, the money will be extremely well used and is so, so greatly appreciated.
Please let us know if you have any questions! And we would so appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing. And all donors will receive the 2022 Henry Card. That alone is a reason to donate :)
While tremendous strides have been made, we are not there yet. Your support and donations are critical in helping us get to the finish line! Thank you for coming alongside us on this journey, cheering Henry on as he thrives and struggles, and making a difference in our lives and the lives of others affected by this difficult disease.
We will be sharing more info on everything during HHW2022. The research necessary for clinical trials and treatments to come to fruition and for all of the other important work BSF is doing, is helped funded with the money we (as in HHW) raise. Thank you!
All donations can be made directly to the Barth Syndrome Foundation and will be tax deductible. We can assure you, the money will be extremely well used and is so, so greatly appreciated.
Please let us know if you have any questions! And we would so appreciate you sharing our cause with your networks! Please find and “like" the Happy Heart Week page on Facebook and Instagram, and make sure you are subscribed to our e-mail list so that you don't miss a thing. And all donors will receive the 2022 Henry Card. That alone is a reason to donate :)
As always, thank you for your prayers, care, concern, and continued support. We are forever indebted and grateful!
With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh
With Thankful and Happy Hearts,
John, Meg, Grady, Henry, Wes and Georgie Branagh
10th Anniversary HAPPY Gear!
Disneyland 2018