Be part of what comes next 💛
This May, we’re celebrating Henry’s 14th birthday with Happy Heart Week—a virtual week of awareness and fundraising supporting the Barth Syndrome Foundation.
Because of this community, real progress is happening.
But we’re not done yet.
Because of this community, real progress is happening.
But we’re not done yet.
To donate directly to the Barth Syndrome Foundation (tax exempt), please click below.
Or send a check to:
Barth Syndrome Foundation
PO Box 419264
Boston, MA 02241-9264
Be sure to include Henry B or Happy Heart Week in the notes section.
Barth Syndrome Foundation
PO Box 419264
Boston, MA 02241-9264
Be sure to include Henry B or Happy Heart Week in the notes section.
A note from our family
There was a time when there were no treatment options for Barth syndrome—only uncertainty.
Today, because of people like you, that is beginning to change.
Your support means more than we can fully express. It brings hope, fuels progress, and reminds us that we are not alone in this.
With gratitude from our family 💛
Today, because of people like you, that is beginning to change.
Your support means more than we can fully express. It brings hope, fuels progress, and reminds us that we are not alone in this.
With gratitude from our family 💛