I am in disbelief as I sit down to write this post. Shocked (not really, because you all are AMAZING!) at what can be accomplished when people come together for a like cause; the results are incredible. Blown away by your selfless support.
It is with great humility and amazement that I share with you all what an amazing job YOU did with Happy Heart Week 2018…
Together, we have sent $72,000 to the Barth Syndrome Foundation over the last 2 weeks!!!!!!
We can’t even believe it.
So awed by your generosity.
We hope you all feel ownership in Happy Heart Week…we couldn’t have done it without you! The amount of money raised, the awareness spread, the lives touched by your showing of care…thank you.
Thank you for being the most generous, compassionate, caring, and supportive group of people we could even imagine.
Thank you for reading all of my emails.
Thank you for passing them on to your families and friends.
Thank you for your sweet notes and words of encouragement.
Thank you for liking and sharing our Facebook posts.
Thank you for allowing yourself to be moved to donate, and for taking the time to act on it.
Thank you for taking the time to tap into your company’s resources, allowing them to help our cause.
Thank you for your thoughts and prayers…we felt them in very tangible ways.
Thank you for thoughtfully giving your money to help with something that could so greatly affect our family.
Thank you for genuinely caring.
We are forever touched, completely indebted, and so very grateful to have you in it with us, part of our Village, helping to hold us up, even before we know we need it. Please know how loved you have made us feel. Not that a dollar amount quantifies love, but just the fact that so many people gave and contributed in some way, shows us such great love. We continue to be deeply inspired by those that have so faithfully year after year given to the Barth Syndrome Foundation, and those that gave for the first time, many that don't even know Henry. If you donated, your Henry Heart card will soon be in the mail!
We are praying over the gifts you made to the Barth Syndrome Foundation; praying that they will be thoughtfully used, and that they would be part of an important step in finding a cure for Barth Syndrome.
If you were not able to contribute this time, please don’t worry. Simply educating yourself is helpful for the greater cause. And if you find you want to give at a later date, the Barth Syndrome Foundation is always happy to receive a tax-deductible gift, any time of year. www.barthsyndrome.org. It's never too late to give :)
Another way we can all continue to help, without giving any extra money, is to shop on Amazon Smile! It has the exact same products and pricing as Amazon, but it allows you to choose a charity that Amazon will donate 0.5% of your purchase to, all the time. Once you choose your charity (Barth Syndrome Foundation), you don’t have to do anything but continue to shop on Amazon Smile. www.smile.amazon.com
Our family is headed to Florida again this summer for the Barth Syndrome biannual Medical and Family Conference. I will post about it on Facebook, and continue to keep you in the know on the status of the clinical trials and Henry’s health. And if you ever have any questions about any of this, please feel free to reach out.
While hard, exhausting, and emotionally draining, this week was also so full of celebration for our family and the beautiful 6 years of life that Henry has shared with us. We are blessed! Thanks for being a part of it.