HAPPY HEART WEEK
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Happy Heart Week 2016 Closing...Thank you!

5/24/2016

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Just wanted to let you all know that our final amount raised for the Happy Heart Week 2016 campaign is...$26,200! WoooHooo! THANK YOU ALL SO MUCH. When I look over the list of donors, I could cry (and I have!) out of thankfulness. Feeling so blessed that our Village cares so deeply and is so very generous. Again, thank you for all of the ways that you may have participated in HHW this year...your thoughts, your prayers, your time in educating yourself, your boldness in sharing our cause with your networks, and of course your money. Couldn't have done it without you.

A couple of things in closing...
  • Continue to help contribute to finding a treatment when you shop on Amazon Smile! It costs you nothing. Set your charity as the Barth Syndrome Foundation. It is the exact same as regular Amazon, but they will donate 0.5% of every purchase you make to your non-profit of choice! http://smile.amazon.com/
  • Please find us on Facebook and "like" the Happy Heart Walk page, showing your support to the masses. https://www.facebook.com/happyheartwalk/
  • Watch for another email from us in the coming days that includes a survey...would love feedback from our Village on the best ways to continue HHW. We would really appreciate your time in filling this out for us.
I am including the Barth Syndrome Foundation 2015 Year-End Report, which I just received today...this is not the journal (that comes out in a couple of weeks), but has a couple of great, inspiring, and hopeful articles in it, including acknowledging and thanking the donors of 2015. It's worth the 5 minutes to read, I promise. https://www.barthsyndrome.org/CMFiles/Publications/Annual%20Reports/2015BSFAnnualReportWeb.pdf


Thank you. Thank you. Thank you.
With love,
The Branagh Family
Picture
Henry with best friend and cousin, Josephine
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    I am privileged to be the mommy of 3 beautiful and wonderful little boys, one of which has an awful disease, Barth Syndrome.


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"The cruelest irony about Barth Syndrome is how deceptively healthy those who have it may appear. A casual observer would never appreciate them to have such a devastating illness."
~Peter Barth, MD, PhD


  • 2020 Happy Heart Week
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