HAPPY HEART WEEK
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HHW 2017 Thank you from our Barth Community

5/13/2017

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Still floating on a high from your overwhelming generosity! I have received several very kind and very grateful notes of thanks from other Barth families and I wanted to pass them on to you. Everyone is really excited and thankful about the money and awareness raised through Happy Heart Week! Thanks again everyone! So proud to call you friends and family.
“Please send my deepest appreciation for everything you've done to help our Barth family!"
“$50,000 is really amazing – I am speechless!  What you have done for the BSF is remarkable. “ “Thank you, thank you, thank you for doing this for all of our Barth guys!”
“I send my sincere gratitude to you for doing this...”
“…the incredible generosity and kindness of your friends and family.”
“That's amazing. Thanks so much!!!!!!!!!!!!!!! You have wonderfully generous friends and family.”
“We are SO grateful!”
“Holy cow. Amazing.”
“So so awesome! Just WOW! Thanks SO MUCH!”
“Just a note to let you know how much we appreciate all your (considerable!) efforts on behalf of your son and all of those served by our BSF.  (Our family) has been at this, as have several others, for many years now and we are incredibly excited to finally see our first trials starting.  There are never any guarantees of course and we still expect a marathon in front of us… but that does not diminish the excitement nor dull the appreciation for where we are now.  And we particularly appreciate having other families join the group.  Families like yours that are willing to jump in and help us make a difference.Your Happy Heart Week fund raiser will help us award one more grant this year and that could make all the difference.  Thank you so much. So glad you guys have our back like we have yours!”
For a personal video thank you from the BSF executive director, check out
https://www.facebook.com/happyheartwalk/.

Hope you feel the gratitude from our Barth community.
Happy Mother's Day!
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    I am privileged to be the mommy of 3 beautiful and wonderful little boys, one of which has an awful disease, Barth Syndrome.


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"The cruelest irony about Barth Syndrome is how deceptively healthy those who have it may appear. A casual observer would never appreciate them to have such a devastating illness."
~Peter Barth, MD, PhD


  • 2022 Happy Heart Week
    • 10th Anniversary Happy Heart Party
  • About
  • Photos
  • Subscribe
  • Contact
  • Donate