It is with so much gratitude, awe, and amazement that I share with you all what a tremendous job YOU did with Happy Heart Week 2017…
We have together sent over $50,000 to the Barth Syndrome Foundation this past week!!!!!
$50,341 to be exact.
We can’t even believe it.
Woooohoooooo! Yippppeeee! Hip hip horrrraaaayyyy!
You guys are the most generous, caring, supportive, compassionate...the list goes on, group of people.
Every year, especially this year, I am blown away by what can be accomplished when people come together for a like cause. The results are incredible.
I hope you all feel ownership in Happy Heart Week…I couldn’t have done it without you! The amount of money raised, the awareness spread, the lives touched by your showing of care…thank you.
Thank you for reading my emails.
Thank you for reading and liking my Facebook posts.
Thank you for sharing facts about Barth Syndrome and how to help with your friends, family, and companies.
Thank you for sending sweet words of encouragement throughout the last week.
Thank you for your thoughts and prayers…we felt them in very tangible ways.
Thank you for allowing yourself to be moved to give, and then acting upon it.
Thank you for giving your money to help with something that could so greatly affect our family.
Thank you for genuinely caring, so much so, that you would do any of the things listed above :)
We are forever touched, completely indebted, and so very grateful to have you in it with us, part of our Village, helping to hold us up, even before we know we need it. Please know how loved you have made us feel. Not that a dollar amount quantifies love, but just the fact that so many people gave and contributed in some way, shows us such great love. We continue to be deeply inspired by those that have so faithfully year after year given to the Barth Syndrome Foundation, and those that gave for the first time, many that don't even know Henry.
We are praying over the gifts you made to the Barth Syndrome Foundation; praying that they will be thoughtfully used, and that they would be part of an important step in finding a cure for Barth Syndrome. If you donated, your Henry card will be in the mail soon :)
If you were not able to contribute this time, please don’t worry. Simply educating yourself is helpful for the greater cause. And if you find you want to give at a later date, the Barth Syndrome Foundation is always happy to receive a gift, any time of year. www.barthsyndrome.org
Another way we can all continue to help, without giving any extra money, is to shop on Amazon Smile! It has the exact same products and pricing as Amazon, but it allows you to choose a charity that Amazon will donate 0.5% of your purchase to, all the time. Once you choose your charity (Barth Syndrome Foundation), you don’t have to do anything but continue to shop on Amazon Smile! www.smile.amazon.com
I will keep you posted on the clinical trial I mentioned and any other exciting news that we may hear, as well as Henry's health and how our little man takes to kindergarten this fall :)
While hard, exhausting, and emotionally draining, this week was full of celebration for our family and the beautiful 5 years of life that Henry has shared with us. We are blessed! Thanks for being a part of it.
With very full, happy, and hopeful hearts,
John, Meg, Grady, Henry, and Wesley